disability--race
I have an ambivalent relationship with my subscription to New Mobility. NM was one of the first things I allowed myself to read when I began this journey. I was deeply fascinated by the way other people "did" disability. Gazillions of ads for things I didn't need, but didn't know existed. Then, there were occasional how-tos that I did need. I felt in claiming my NM, I was claiming my place in the world.
As it turns out, I would have been better off with subscriptions to Mouth and/or the Ragged Edge; I soon found NM boring. The majority of the columnists were older than me, whiter than me, and maler than me. I still found the articles mildly appealing, but I was considering ending my subscription when I discovered that there was a photograph of a non-white woman on the cover. This spurred me to action. Was NM breaking with its past? I looked for other signs of non-whiteness, but found precious few. I wrote to NM -- race! People of colour! -- not enough. NM was somewhat ungracious in its response but admitted it wanted to be a little different. They chided me for undercounting by one -- I never guess from name alone: LaTara Jones is probably not male, but she might be of any ethnicity.
I stuck with NM, weirdly, though. Probably out of loyalty to that first intimation of community. There were a couple of hints at racial and ethnic differencs. A face here and there (though most of the advertising remains white). A terrible article on racial prejudice and assistance from unknown people. Imagine my shock and surprise, then, on finding in this month's issue a piece on the minoritization of people of colour in the disability community (subscription only). Had NM actually struck the motherlode?
Well, not exactly. (I'm hard to please). But I did learn some stuff -- ADAPT has a more racially diverse membership than basically any other disability related group, particularly in AZ, CA, DC, and TX. The reason seems to be that ADAPT's issues in those areas matter to disabled people of colour. OK. That's a good first step towards bringing poc into the movement.
NM, misspelling Judy Heumann's name, offers the following case for the lack of brown faces: "there were logistical reasons in the past why they disability rights movement was mainly made-up of white individuals. Unlike today, there was no accessible public transportation and it was difficult to get around. Moreover, people lived in more segregated settings, which often guided their relationships." This is a direct quote from NM, but it seems, I hope at least, to be a paraphrase of JH herself. It's not enough to say the movement didn't include black people because there needed to be accessible buses before black people could get a foot in the door. It's not like all the white people involved lived in the same area ...
Many hundreds of years of race history doesn't just go away because everyone is sitting in chairs. The model, itself, is not easily aligned with cultural understandings of disability in other racial and ethnic groups. Disability itself runs into tension with liberalism -- here, here, but best of all here -- add race to the mix and the whole thing implodes.
The conclusion is weak: "systemic acceptance" of difference is a nice idea, but it will not be enough. The DRM needs to be open to change. Some of the articulations of core principles will change. The safety and familiarity will change. Passive acceptance and charitable tolerance are not enough.
NOTE: the other end also needs some work, as NM reminds us, not every movement run by people of colour is welcoming to those of us with disability. Open up, you all! We're at the door.


4 comments:
NM and I have gotten into this before, as they've repeatedly demonstrated arrogance and ignorance about the movement. The disability rights movement would have died at its inception without minor but critical help from the Black Panthers at a key turning point (the Berkeley sit-in).
While there is a distinct note of whiteness in the elder ranks of advocacy (Judy being a notable exception), that's something that we fought to balance--and, I think, succeeded--in the youth portion of the movement in the late 90s.
My personal take on it is that the geographical home of the movement--California, and to an extent the Northeastern academic bastion--was responsible for the racial mix. In addition, I suspect that for many people racial issues superceded disability rights at that point in time.
I still say you need to come visit us down South...you don't get much more mixed.
Yeah, I'm coming, I'm coming. But probably never to live. The NYC/SF thing is too good.
These links are to Judy's interviews about the movement
http://bancroft.berkeley.edu/collections/drilm/collection/items/heumann.html
and
http://content.cdlib.org/xtf/view?docId=hb9v19p0k9&query=&brand=calisphere
http://bancroft.berkeley.edu/collections/drilm/collection/items/heumann.html
The next link is what I wrote about the Black Panthers.
http://cripwheels.blogspot.com/2007/05/badd-disablism-language-disability.html
i'm so excited you posted this! one of the first blogs i wrote was on meaningfully including people of all background, particularly pocs (i'm not talking about "diversity" because so many times orgs get a few token crips and...that's it.). that blog didn't get a very good response (one person wrote: hasn't this been said before???) yes perhaps but things haven't changed.
anyways, so it's awesome that another person is writing about it too. i probably won't ever sub to NM (community-centered enough for my taste) but i do hope it changes.
"Open up, you all! We're at the door."
For real! I couldn't express it any better than this.
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